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Active Studies

The Rochester Roybal Center for Social Ties & Aging Research invites individuals caring for a loved one with dementia to participate in research studies. All studies aim to learn about ways to increase social connections and improve well-being for individuals who are caring for a family member with dementia. To learn more about any of these studies and complete a brief eligibility survey, please call or email the Health Aging Research Program: Call (585) 276-6204 or email: HARP@urmc.rochester.edu

Are you 50 years of age or older? Do you sometimes feel stressed because you are caring for a family member with dementia? Do you also sometimes feel isolated or left out or that you lack companionship? If so, we have several ongoing research studies you may be interested in.

The Connect for Caregivers Project

The objective of the Connect for Caregivers Project is to learn about how individuals who are caring for a family member with dementia navigate their social relationships and supports, including barriers and facilitators to connections.

The Engage Coaching Project

The objective of the Engage Coaching Project is to develop useful strategies for helping individuals who are caring for a family member with dementia improve their social relationships and social supports. Study participation involves eight Engage Coaching sessions (via Zoom or phone). Each session, your coach will help you complete a process we call ‘action planning,’ in which you set a goal for the week, brainstorm strategies to meet the goal, and identify concrete steps to take to achieve the goal. Learn more about The Engage Coaching Project.

Conexión para Latinos (Connection for Latinos)

The objective of the Connection for Latinos Project is to learn how to help individuals who are caring for a family member with dementia improve their social relationships and social supports. The Project is designed to help understand your experience of and barriers to social connections. Learn more about Conexión para Latinos (Connection for Latinos).

El objetivo del Proyecto Conexión para Latinos es aprender cómo ayudar a las personas que cuidan a un miembro de la familia con demencia a mejorar sus relaciones sociales y apoyos. Este Proyecto está diseñado para ayudar a comprender su experiencia y las barreras a las conexiones sociales.

Obtenga más información sobre el Proyecto Conexión para Latinos (Español)

The Stress Reduction Program

The objective of The Stress Reduction Program Project is to identify the role of stress reduction in improving relationships of individuals who care for a loved one with dementia. Study participation involves 14 daily stress reduction sessions that last about 10 minutes each using a mobile health app.

Mindfulness to Reduce Loneliness in Older Caregivers

The objective of this pilot study is to provide initial evidence of the role of mindfulness training in improving social disconnectedness - including social isolation and feelings of loneliness - in older caregivers for family members with Alzheimer's Disease and Related Dementias. Participants will be randomly assigned to one of two study arms where they will use either a (1) smartphone-based MBSR app (Headspace) or (2) active control (breathing app) for 14 days. Loneliness and quality of social interactions will be assessed using end-of-day diaries at initial visit and 14-days after enrollment. Learn more about the Mindfulness to Reduce Loneliness in Older Caregivers study.